Monthly Archives: March 2017

It was a weird (but amazing) day

I’ve been feeling crappy. I cannot lie. I’m super run down. I would sleep 24 hours a day if that were remotely practical. My walking has been meh, even with... Read More

Relationship status: It’s Complicated

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More

What a dumb day

Today started out pretty nice, really. I woke up around noon after a lovely sleep. I had pancakes with my niece at my favorite breakfast place (who cares if it... Read More

Broken eyes, broken brains and the things we don’t talk about

It’s Sunday and I find myself muddled. Again. I think it’s the weekends where I find myself with lots of time to do nothing, that I struggle. Sometimes it’s not... Read More

Musions on Infusion (possibly the last chapter for a while?)

I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More

Quick funny story

So you may or may not know that I’ve been in specialty pharmacy pre-authorization hell for the last few days trying to get my Ampyra refilled longer term. It’s not... Read More

In the category of “always learning the hard way…”

I offer this quick update. As evidenced by my schlumping, stomping, dragging, bobbing and weaving all over downtown Pittsburgh today, I can confirm that it is not actually a good... Read More

Go ask Alice (or Bethybright)

You know the song, I’m sure you do. The one about how one pill makes her larger and one pill makes her small? I used to love singing that song... Read More