Posts tagged with: hope

Mary Jo: The Third in a Series

I have to be honest. When I started this series about the surprising and wonderful people that have come into my life as a result of having multiple sclerosis, most... Read More

The seduction of looking back

Alternate title:  “Why I didn’t write an inspirational goodbye to 2020,” by Bethy Bright and Dark. It felt too long? Not punchy enough? Too literal maybe? You know I’ve given... Read More

The ups and downs of a privileged life with chronic illness

According to many reliable sources, i.e. mostly rando blogs on the internet, the five most stressful life events are the following: Death of a loved one Divorce Moving Major illness... Read More

‘Twas the night before discharge

And all through my brain, were thoughts most unwelcome that may drive me insane. I in my pajamas worn for 27 days my aide in her scrubs, packed up my... Read More

What a strange night

I’ve been putting off writing this post for a while now. And now that I’m finally writing it, and on my phone of all things, I’m not sure how eloquent... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

Can you believe it?

They expect me to shower. Not just once. No they expect me to shower twice. Using some weird red antibacterial soap that looks and smells strange. Oh, I did it... Read More

Lucky number 4

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More

I’m not handling this well

I thought you should know the truth. It’s now 25 sleeps until baclofen pump surgery day and I’m falling apart. Losing my mind. Feeling terrible and wishing my life away.... Read More