Posts tagged with: life with MS

A very bright and dark Christmas

I’m sure it will come as no surprise to any of my readers that I was not looking forward to the Christmas holidays this year. I mean, I’m not terribly... Read More

Been there, done that (and I’m so grateful)

Here’s the thing. We call multiple sclerosis a snowflake disease and with good reason. MS is never the same for any two people. Things that are major issues for me,... Read More

I’ve got nothing

Usually my blog posts start as thoughts that I can’t get out of my head. I noodle and I roll them around until I virtually have to sit down and... Read More

Twas the night before infusion #2

Tomorrow, merely one sleep away, is my second full dose of the new goo (Ocrevus for new readers). I feel like a kid before the first day of school. My... Read More

My expensive Internet slippers tried to kill me

It’s been a good long time since I took a good tumble. I haven’t bragged about it much. Especially whilst suffering from the dizzies and woozies during this last relapse... Read More

When words fail the writer

We all get there eventually, I guess. We all get to the point where you are just so blind with anger and frustration that you don’t even have words to... Read More

This is a happy post about fear

Sounds like an oxymoron, I realize, to write a happy post about fear. That’s why I’m starting with the good news. I survived! Yet, as I continue to slog my... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

I cut my hair (and I didn’t post a pic)

This might seem like no big deal to you. If you know me, you’re probably thinking, “Well thank god because who gives crap about your hair? You’re way too obsessed... Read More

Relapse: the Post Script

  The thing is it doesn’t really matter how fed up I am. When you go through something like this last relapse, you tell yourself that it’s a minor set... Read More