When I first moved into my current house, about a year or so after my husband died when we were both 30, I found myself in a strange spot. I... Read More

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

Hey friends. This is just a quick note to let folks know that I am back in the hospital for a while and am having difficulty writing (typing really) on... Read More

There are sayings out there that get tossed around in the MS/chronic illness community that are intended to help folks with MS have perspective on the unique nature of this... Read More

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More