Posts tagged with: living with MS

The Un-Sayable Words We Say

If you’ve been with me on this journey for a little while, you probably know that I rarely hold anything back. For better or worse, these pages have been my... Read More

What the actual F*%K?

I agonized over writing this post. See, I realize that I only a week or so ago published a post wherein I was feeling moderately optimistic and upbeat even about... Read More

Random thoughts from the living room floor

It’s not a bad thing this time, this whole being on the floor thing. See, I had something called a “co-session” of therapy this afternoon where my PT and OT... Read More

This video thing…

It’s weird. I agree. But it’s what I can do right now so…enjoy Bethy Bright and Dark the Movie, part II. Also enjoy the wicked strange faces I pulled for... Read More

Can you believe it?

They expect me to shower. Not just once. No they expect me to shower twice. Using some weird red antibacterial soap that looks and smells strange. Oh, I did it... Read More

Lucky number 4

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More

Absurd or Sublime

For anyone with a command of basic math, you’ve probably already figured out that the image up there should be a number 9 and not a number 10. There’s a... Read More

And here we are

I’ve wanted to write a post for a while now, but the words just wouldn’t come. I think the combination of my massive doses of muscle relaxers coupled with a... Read More

I’m not handling this well

I thought you should know the truth. It’s now 25 sleeps until baclofen pump surgery day and I’m falling apart. Losing my mind. Feeling terrible and wishing my life away.... Read More

This time of my confinement

I’m officially 31 sleeps away from my very special Valentine’s Day date night with Dr. Nestor the Long-Eared neurosurgeon and the pieces are starting to come together. I’ve gotten my... Read More