Posts tagged with: singlespoonie

And here we are: crisis mode

It’s been a good long time since I’ve felt like my typically quasi-functional MS self. I think that’s been obvious by my unwillingness to write about it. I mean, when... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

This video thing…

It’s weird. I agree. But it’s what I can do right now so…enjoy Bethy Bright and Dark the Movie, part II. Also enjoy the wicked strange faces I pulled for... Read More

Tendonitis is a real pain in the…

…writing arm. So I’ve tried something a little different this time. I made a little video. No stylists, makeup artists or cinematographers were involved in this very high quality production.... Read More

When your switch won’t flip

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More

The unexpected upside of Lemtrada

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in... Read More

And then she slept

I’ve been meaning to update the blog with my post-Lemtrada experience sooner than this but here’s the thing: I’ve been asleep. If you’re a regular reader of this blog you... Read More

It finally happened

This whole thing was bound to catch up to me. Eventually. I knew the day would come when I’d be forced to face the fact that this disease I’m still... Read More

I thought you should know…I’ve been here before

It’s not technically another two-month flush, but it feels like it is. I went back into my own archives to remember what I’d written during the actual two-month flush between... Read More

The in-between times are the hardest: episode 3? 4?

The labs have been drawn. So many vials of blood! The urine has been tested. The body has been checked for suspicious moles (all clear) and the pap smear has... Read More