Posts tagged with: Tysabri

When everyone else seems to be drinking lemonade.

I’m a member of many Facebook groups dedicated to the transition to the new goo, Ocrevus, because I was looking for any information at all from any source at all... Read More

Relapse: Part Deaux

He called me. He actually called me himself. He didn’t sic Evil Nurse Carol on me, The Great Scott all powerful and good called me back his very own self.... Read More

Maybe I have unrealistic expectations

It always comes down to this. The most basic things are my undoing. But when I thought about it more, I am starting to realize something that is probably painfully... Read More

We’ve set a date!

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More

I’ve been kind of quiet lately

There’s been a good reason for it, to be honest. I wanted to write a post about the situation I found myself in last Friday afternoon but at the same... Read More

Musions on Infusion (possibly the last chapter for a while?)

I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More

A little love…for me

I’ve written before about how bad I am at optimism. I know it’s nothing to be proud of. I know our thoughts have a direct impact on our lives and... Read More

Musions on Infusion, episode (I forget)

I had an off-schedule infusion today because it was also my day to visit with The Great Scott, in the flesh. You see TGS when he can see you, not... Read More

Lucky number 7? Not actually a real thing

I feel the need to note that lucky number seven is not a real thing. I’m still sleeping most of the time or feeling like the walking dead. Well. Feeling... Read More

BethyNotBrightButNotDarkEither…Infusion number 7

Infusion day starts super early. And usually ends up with me in bed all day. Today is no different! I’m just rousing myself for food. To check in with the... Read More