I realized today that I’d not updated the blog with my latest news coming out of my test dose of intrathecal baclofen to determine my suitability for the baclofen pump.... Read More

Here’s the thing about putting all your business on the Internet (as my mother calls what I do)…it means when bad things happen you feel compelled to share the news... Read More

I was probably due. For those unfamiliar, ENC refers to Evil Nurse Carol, she being the RN who is the right hand woman of my MS specialist we all know... Read More

I’ve always been very much a fly-by-the-seat-of-my-pants kind of girl. It wasn’t really a choice I made – it was just my nature. I had a boss once who said... Read More

via GIPHY  That’s an actual representation of me trying to sleep last night. I didn’t know when this whole MS adventure started back in December of 2015 that I would... Read More

I’ve been spending a lot of time at home, as you know, while I am recovering from Round 1 of Lemtrada that I had the first week of November. Home,... Read More

I’m tired of writing about my MS. The thing is, nothing is changing fast enough for me. I’m still struggling. I’m still waiting for the illusive switch to flip. It... Read More

I’ve never been good at math. I was a writing major in college. Even more, I was a creative writing major (with a minor in political science but who cares... Read More

But since I’m apparently in a marathon that I never signed up for here’s what I imagine that would be like. When preparing for a marathon, you train for it... Read More

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More