Posts tagged with: fatigue

Irony is my jam

I stumbled across an article from The New Yorker yesterday that got me kind of excited. It was written in 2013 by Meghan O’Rourke about her experience with autoimmune disease... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

I’m not handling this well

I thought you should know the truth. It’s now 25 sleeps until baclofen pump surgery day and I’m falling apart. Losing my mind. Feeling terrible and wishing my life away.... Read More

Testing 1…2…3

The thing about being tested is you can prepare all you want but the Universe probably has her own ideas about how things are going to roll. You’ve probably gone... Read More

When your switch won’t flip

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More

Update from my bubble…Inside the mind of one house-bound MS’er

Patient, calm, Zen-Beth has left the building, folks. She’s been replaced with Can-We-Get-This-Show-On-The-Road-Beth and you know that’s not a good thing. Not a good thing at all. Let’s see…where have... Read More

The unexpected upside of Lemtrada

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in... Read More

The subtle art of not panicking

When I decided to go for this new approach to my treatment, I made some promises to myself. Maybe they were more like challenges that I presented to myself than... Read More

Musions on Infusions: 40% Down

I When I started this Lemtrada journey on Monday I had every intention of doing a daily blog describing the day-by-day experiences of the treatment. After my first day I... Read More

It finally happened

This whole thing was bound to catch up to me. Eventually. I knew the day would come when I’d be forced to face the fact that this disease I’m still... Read More