Posts filed under: the baclofen pump

And here we are: crisis mode

It’s been a good long time since I’ve felt like my typically quasi-functional MS self. I think that’s been obvious by my unwillingness to write about it. I mean, when... Read More

Mary Jo: The Third in a Series

I have to be honest. When I started this series about the surprising and wonderful people that have come into my life as a result of having multiple sclerosis, most... Read More

The things we don’t talk about (Volume 2)

Back in 2017, before my MS went into hyper-speed mode, I shared what I thought at the time was a very open and vulnerable post about some of the body... Read More

The Value of a Life Inside

I don’t think there is a MS-related concept that has troubled me more than the notion that since becoming a full-time wheelchair user I have become what some would consider... Read More

Happy birthday to me

The bar for having a happy birthday this year is decidedly low, what with the fact that I spent last year’s birthday doing my first stint at inpatient rehab after... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

Yet another Saturday in the joint

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More