Posts filed under: General MS Topics

Mindless late-night ramblings

I have a feeling I’m going to regret this…but here is a new “post” of sorts. Though I’m not sure qualifies as a post at all.... Read More

You in danger girl

Do you remember this epic scene from Ghost when Whoopi tells Demi Moore’s character Molly how she was in danger from specters from the great beyond? Better yet do you... Read More

The Value of a Life Inside

I don’t think there is a MS-related concept that has troubled me more than the notion that since becoming a full-time wheelchair user I have become what some would consider... Read More

Nighttime: An Ode

Nighttime is alive with sound here at the Hidden Falls Home for Wayward Women. Nighttime is the sound of a million unseen creatures coming in through my open windows. I... Read More

For Meggie

I can’t talk to my friend Meg right now. Which is difficult because I also can’t stop thinking about my friend Meg right now as she is ensconced in a... Read More

What are you doing today?

Holidays are the best. For this Fourth of July, I was fortunate enough to have not just the usual three-day weekend, but my French-company gives us a five-day weekend for... Read More

Falling Slowly

As I started writing this post (on my damn phone again…grrr), I got the intense urge to go back through my nearly five years of writing this blog to check... Read More

The seduction of looking back

Alternate title:  “Why I didn’t write an inspirational goodbye to 2020,” by Bethy Bright and Dark. It felt too long? Not punchy enough? Too literal maybe? You know I’ve given... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More