There are sayings out there that get tossed around in the MS/chronic illness community that are intended to help folks with MS have perspective on the unique nature of this... Read More

If you’ve been with me on this journey for a little while, you probably know that I rarely hold anything back. For better or worse, these pages have been my... Read More

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

It’s not a bad thing this time, this whole being on the floor thing. See, I had something called a “co-session” of therapy this afternoon where my PT and OT... Read More

It’s weird. I agree. But it’s what I can do right now so…enjoy Bethy Bright and Dark the Movie, part II. Also enjoy the wicked strange faces I pulled for... Read More

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More

I’m officially 31 sleeps away from my very special Valentine’s Day date night with Dr. Nestor the Long-Eared neurosurgeon and the pieces are starting to come together. I’ve gotten my... Read More

I realized today that I’d not updated the blog with my latest news coming out of my test dose of intrathecal baclofen to determine my suitability for the baclofen pump.... Read More

Here’s the thing about putting all your business on the Internet (as my mother calls what I do)…it means when bad things happen you feel compelled to share the news... Read More

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More