I’ve decided to start a new content series on my usually very serious, sad sack blog page that attempts to look at the things MS has brought into my life that I kind of appreciate.
There aren’t many, I’m not gonna lie. There are a few. A little. A very little. But still. It counts! I’m trying to be positive up in here.
Item the first…
I used to go to happy hour on Friday’s after work pretty much religiously. My friends and I looked forward to HH all week. We started calling happy hour Hilton Head when one of my best friend’s kid saw a text from me on her phone and she asked him to read it to her. He said, “The Widow wants to know when you’re arriving at Hilton Head.” Kids! They say the darnedest things.
Hilton Head morphed into Happy Time morphed into sad sack stay at home stone cold sober time – and, well, that’s not as fun as meeting at Hilton Head every Friday at 4pm with your besties.
So now there is no happy time even when I do make it to the office on a Friday (like I did today) because I’m bad enough on my feet without introducing intoxicants into the mix. I also have no use for random bartenders with goatees showing up at my house after last call or the wicked hang overs that made me feel like I had MS before I actually did but we won’t get into all that dirty laundry, will we?
I just came home on a Friday night and it was just like any other work day. How sad, right? Well it might have been but then I decided to make it Happy Manicure Time.
It was serene. It was delightful. I am getting really fucking good at doing my own nails and I ain’t afraid to say it. That’s a damn nice gel manicure.
And, yes. That is yet another salt shaker shaped like a cat (if you don’t follow me on Instagram, I often take pics of my DIY manis holding salt shakers. Shaped like things. Ok. Shaped like cats). So shoot me.
After I was done doing the world’s most profesh DIY gel mani, I was terribly thirsty. And it made me remember another thing that MS has done for me that doesn’t entirely suck.
Thing the second…
I drink a shit ton of water every day. Like 6-7 liter bottles of water every day. The water in my ‘hood isn’t tasty. So I’ve always had a water cooler in my house. I refill my liter bottle all day long (if I’m home) which means I go through a ton of 5 gallon water cooler bottles.
This used to be a pain for a couple of reasons. First, I have a cat (Fred, he’s the real cat you see pictured above with the fake ceramic cat). Fred used to like pushing down on the water spout until all 5 gallons of water ran out all over my kitchen floor. I know. He’s totally an evil genius but being the super independent McGyver Gal that I am, I concocted a door system for my water cooler. Out of duct tape. It was brilliant if a tad unsightly but truly genius but it looked a little crazy. Like I’m sure they had a water cooler covered in duct tape inside of Grey Gardens somewhere. I see where my life is heading. Make no mistake.
What duct tape couldn’t solve was the issue of how to get the damn giant bottle of water on top of the water cooler once a week or so when I’d inevitably run out. I made due pre-MS. It sucked but I took pride, again, because I could do it myself no matter how big of a pain it was.
Fast forward. I get a chronic degenerative disease. My haven of independent single girl living transforms into the evil place where things need doing that I have a hard time doing now. Like lifting heavy things.
That’s just one example of many, many things that were suddenly so freaking hard. But it haunted me.
Trying to work up the strength to hoist that giant bottle on top of the water cooler sometimes put me right over the edge. I’d lay on my very hard ceramic tile kitchen floor, exhausted, wondering the whole time how the hell I was gonna get up again (and hoping nobody would come to my front door and see me laying on my kitchen floor exhausted by the tiniest of tasks).
I’ve gotten a whole lot better at asking for and accepting help to do every goddamn little thing that needs doing in my house. But I still want to be able to do some things myself, ya know?
Voila.
Not only does this sleek, sexy goddess of a water cooler brilliantly house the giant ass heavy water bottle underneath the cooler at the bottom (I can do it myself!! Woot woot!) but it also has hidden water spouts. Fred can’t even figure it out and he’s an evil genius!
There’s so much winning happening every time I refill my liter bottle it’s hard for me not to get giddy about the whole thing. Seriously. How did I live without this for almost 20 years that I’ve lived (mostly) alone?!?
I have no idea.
So there you have it. What Have You Done For Me Lately: MS edition Episode 1 is in the bag. I have to go now and don my very favorite Jammies and admire my own nails by the light of Netflix glowing from my giant TV. And it will be good.
I can only hope the water runs out later so my weekend can be complete.
Holy shit. I really need to get out more, huh?
Dawn
April 13, 2018 7:49 pmAwesome. So proud of you. I managed to stay upright all week so far. SCORE!
bethnigro0212@gmail.com
April 13, 2018 8:20 pmThat is wonderful!! We are amazing aren’t we!!? 👏🏻👏🏻👏🏻
Deborah Marx
April 13, 2018 7:59 pmI don’t know how I find your blog months ago but I sure am glad I did! Your writing is awesome and so are you! Your brutal honesty is so admirable, most times I am in awe. Thank you for sharing your life with us.
bethnigro0212@gmail.com
April 13, 2018 10:17 pmThat’s so nice of you, Deborah! I’m super happy you found my blog too. I’m always amazed when someone actually likes something I’ve written. It really makes me happy! So thanks for that bit of extra happy today! ❤️
Positively Alyssa
April 14, 2018 2:53 pmI find your writing so inspiring and unbelievable. I am SO glad that I have found you and your blog. It definitely is not easy living with MS, but we all find ways to keep moving forward. I have to say, I love Hilton Head, but I love any place near the ocean. Unfortunately, I have not been in way too long! We only live about 3 hours from Myrtle Beach, so it isn’t a long drive. You are very real and I appreciate that so much! Thank you for sharing your story and I love your attitude about things!!
bethnigro0212@gmail.com
April 14, 2018 4:47 pmThanks so much for your kind words, Alyssa! It means so much to me coming from another MS blogger with such a positive voice. I try to keep my sense of humor – it’s not always easy but we have to try, right?? Sending good vibes your way my friend.
Positively Alyssa
April 14, 2018 5:41 pmYou my dear are more than welcome! I love building connections with other MSers. There is a strong understanding and compassion for each other. It is not easy keeping a good sense of humor dealing with what we deal with, but at least we try. Staying positive is not easy, but I can not give into the illness. I promised myself almost 17 years ago I would not let MS control me. I am so thankful to have found your blog and built a connection with you! Lots of good vibes and comfort to you my dear!!
Positively Alyssa
April 14, 2018 5:41 pmOh you said you have Facebook, right? I would love to find you on FB!
Paula Kuebler
April 16, 2018 9:45 pmAlways glad for small victories!! Your nails look amazing!! You make me laugh out loud sometimes. I’m understanding so much more – each post. I just turned 55- I don’t have ms but neuro chronic Lyme(35+ years) and mold. I fall a lot- . I’m your New Orleanian follower. I read all your blogs. Recently found out I need 2 new knees- I am going to wait on that for a while- lol🤞😂
Love Stanley. Good luck w your infusion. We’re gearing up for jazz fest at end of April.
It’s our stay-cation. Hope spring 🌷🌼🌺finds you outside in the sun?!! I love looking at the sky on my good days!!
bethnigro0212@gmail.com
April 16, 2018 11:34 pmI’m so happy you enjoy my writing Paula! It’s therapeutic for me but even better when someone tells me they enjoy it. Sometimes you gotta get this stuff or you wanna scream. I’ve never been to New Orleans but I’ve read a ton about it. I’m sure it’s amazing there. Enjoy jazz fest!! And here’s to more good days ahead. ❤️👍🏻
midgesms
April 24, 2018 9:04 pmYour sense of humor and realness is what makes you so friggin amazing. You must know that since my diagnosis I have looked to you for the no BS look into what this all is. It is your journey, your stories, the insight into your world that allows us to laugh, or cry along side with you. You have to know what impact it has on so many people, me for instance, this east coast girl trapped in the mid west, dealing with what MS is and trying to figure it all out. I love the idea of blogging, but I see so many sharing their stories I think I would get lost in the mix, but even if I did, who cares? It would therapeutic for me at least lol I hope you are having a restful week lad, always wishing you the absolute best <3
bethnigro0212@gmail.com
April 24, 2018 9:21 pmDo it! The writing is the only thing that helps me. I’m still amazed when I think about it that anyone else actually reads it! That’s just the icing on the cake really. I’ve written my way out and back in again through some of the most intense periods of my life. I guess this one should be no different. If you wrote your story I would read it! So there. 😉
midgesms
April 24, 2018 9:52 pmI started the page.. loaded some pics, & wrote my intro. I’m lost! Maybe I’m too tired. You are amazing. Embrace that lady. Thank you!
bethnigro0212@gmail.com
April 25, 2018 10:07 amYay! Take your time. There is no rush. You’re doing this for you, not for anyone else, so take your time and enjoy the writing itself. 🙂