Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally prepared for the Universal comeuppance…but I had an ok day today.

Now. Before you get all excited and start doing happy dances it should be noted that I spent most of today in my bed. I woke up feeling exhausted because that’s how you wake up when you happen to be on horse-level doses of multiple drugs to relax your incredibly spastic limbs. You also feel exhausted because the simple act of dragging these legs around, even when these legs do not leave my house, is sometimes just too much.

I’m tired, y’all. My attempts to keep up with my extra-small-teeny-tiny-life have felt like too much lately. I wanted a bed day. I needed a bed day.

But, BBAD, didn’t you just write a post not so long ago about how your extreme spasticity had ruined your lifelong love affair with your bed? Didn’t you just declare The Puffy Village a no-relax zone? And you would be right but for the borderline miraculous changes I’ve made to accommodate my insane limbs.

They are small changes! But they have been miraculous so I thought I’d share. Who knows? Maybe one of you out there is experiencing Uber levels of spasticity and you could use a for pro-level tricks from the Spaz to end all spazzes. So I’m here for you. Just like always. I’m all about providing things in this asshole disease-riddled life that can diffuse some of its inherent assholery.

My spastic legs have been also plagued with horrible swelling for no good reason. So you might recall my dramatic attempts to create a foot elevating situation in my bed in the very recent past. It involves my bed wedged that I sometime use for propping myself up at a good angle for television viewing (or mobile extemporaneous blog post writing as is happening right now) but I surmised I could use it at the opposite end of the bed to prop up my water balloon looking feet. And it worked! But the unforeseen side-effect of cankle elimination is blissful sleep. And what’s even better, when I wake up suddenly because I have to pee or because my horse-doses of oral muscle relaxers have worn off, this velour wedge pillow gives me leverage for positioning my legs for bettering my chances of getting out of the bed without mind-numbingly painful muscle spasms. It’s not pretty! My bed looks like some kind of crazy adult jungle gym. But it works. And sleep just got a tiny bit less stressful.

Now for those moments when this wonderful wedge pillow is supporting my back and not my legs, I have the annoying challenge that my legs don’t want to stay put on my very silky, high quality bedding. They want to slide out in front of me sending me into a body crippling toe-to-hip spasm that is not only terrifying but it’s super fucking painful.

The grippy Heat Holder slipper socks had been helping but then it got to be summer in February and those furry little socks were frying my poor overheated tootsies. What to do? Bare feet are too slippery. Furry socks are too hot and lead to cankles which are not only painful they’re just plain ugly.

Enter ToeSox by Thirty Three Threads. One of my friends posted about these socks for her Pilates. They help her stay on her feet and not slide all over the place. Hmmmm. Could they work for me? I mean, I’m not jumping into any new workout programs any time soon but I would like to watch television in bed without the constant threat of full leg spasms. The toe part has the added benefit of keeping my toes spread in a good position so when it’s two hours until my next dose and my toes start to curl up all painfully, these wacky little toe socks do the trick.

They’re also pointelle knit so they don’t overheat my feet and ankles thus minimizing the threat of morning cankles. Another multi-tasker of my tools to thwart the ruination of a decent night of Netflix-ing to distract from my utter misery.

I hit Publish too soon and forgot one more tip I had that contributed to my pretty good day today. If you’ve read my blog for awhile you know that cannabis hasn’t been the miracle drug it is for so many MS’ers. It tends to make me feel even shakier on my feet, less solid and much less comfortable. I’ve always had a dosing problem. Smoking or vaping is hard to gauge. You don’t know you’ve gone too far until you’ve gone too far. But I recently discovered the benefit of very specific doses of THC that are available in edible form. Sometimes 10mg is too much for me and I eat half a gummi but it’s not very scientific. I came across 5mg dose edibles available in Cali (these fell into my lap from somewhere in LA though I cannot divulge how). But they’ve been kind of life changing. When I’m two hours until my next dose but my legs are all spasmed up making it impossible to relax, one of these can put me to sleep and take the edge off until the next dose of my pharmaceuticals. Also they’re yummy. So if you live in California, check these out. Smaller doses can be easier to manage. Five mg doses seem to be the sweet spot for me.

So yeh. I stayed in bed until around 3pm today. I was comfortable in my bed because I suddenly had all of the right toys for ultra-spastic leg management. It dawns on me how ridiculous it is that surgery day is only 4 days away and with any luck at all I won’t need all of these extreme measures to allow me to relax after my recovery. But it’s nice to have them just the same.

Mostly I just wanted to record that I’m here, today, four days before my surgery and recovery days begin and I had a pretty damn decent day. Oh. And I am 100% back in bed tryna keep my damn eyes open.

Go figure.