All posts by: Bethy

The daily Provigil balancing act

Learning the difference between feeling like I can do things and actually doing them and feeling the after effects is my current situation. Provigil makes me FEEL like I can... Read More

Remembering…me?

I had my second MRI today. It was generally uneventful. I laid inside of that tube with a towel over my eyes listening to the crazy banging and whining and... Read More

Drugs are super cheap at Costco…Forreal

OK. My mind is officially blown. I heard this week that my insurance appeal was denied. My doctor is trying a second level appeal but they aren’t hopeful. I find... Read More

Eff you, Charlotte Airport

Charlotte airport gets strike TWO. I waited for 25 minutes for my wheels, until I gave up and walked. I got as far as the “assistance hub” where I saw... Read More

All of the “what ifs”

It’s the night before my next trip, the one that is rudely interrupting my weekend and taking me back to Charlotte. It will be my first trip on my new... Read More

My personal chemistry experiment

My life has become a chemistry experiment. I mean, on one hand, I guess that’s better than my life being a never ending loop of sleeping, working, trying to watch... Read More

Provigil vs. Baclofen

In the battle of provigil vs baclofen…One wakes me up. One knocks me out… Provigil is winning. I’m wide awake. It’s 4AM. And beginning to panic about the wasted day... Read More

Adventures with Provigil

I took my first dose of Provigil today. I’m not sure I loved it. I felt kind of tingly and buzzy all day. Of course, I sort of forgot to... Read More

A visit with the Great Scott

Well, the much awaited meeting with The Great Scott (this is my pet name for my neurologist, Dr. Scott) was slightly more helpful than I expected. It does throw me... Read More

Work…is so much work

It’s been a really shitty couple of days with these legs. They just don’t want to work. They’re so heavy. And shaky. All at the same time. I’m trying to... Read More