I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

Here’s some news. On what is usually my favorite day ever, that would be hair day, I experienced the first bleach disaster I’ve ever had while in a professional’s chair.... Read More

A few weeks ago when I looked down at my hand while I was typing some email or other, one of approximately seventeen thousand email I send in the average... Read More

I’ve been holding it together. Mostly. The two month flush is for real, though, and I’m back to that place where I feel like my body is just out of... Read More

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More

I’ve been feeling particularly shitty lately, as I think most of you probably know. It’s meant taking everything pretty slow, resting a whole lot and pinning a lot of hope... Read More

It was a good day today. I know I write a lot about the bad days so I thought I’d change it up and mark one of the good ones.... Read More

I’m on my two month flush without DMT’s while I anxiously await approval for Ocrevus. Recent drama didn’t really make things easier (hello? Stress makes my symptoms worse. Good times).... Read More

There’s been a good reason for it, to be honest. I wanted to write a post about the situation I found myself in last Friday afternoon but at the same... Read More

And I’m having my damn soufflé, anyway, so take that Great Scott. Take that.  Instead of my infusion I got to sign the paperwork for the new goo. Three signatures.... Read More