Another quickie

It was a good day today. I know I write a lot about the bad days so I thought I’d change it up and mark one of the good ones.... Read More

The waiting is the hardest part

I’m on my two month flush without DMT’s while I anxiously await approval for Ocrevus. Recent drama didn’t really make things easier (hello? Stress makes my symptoms worse. Good times).... Read More

I’ve been kind of quiet lately

There’s been a good reason for it, to be honest. I wanted to write a post about the situation I found myself in last Friday afternoon but at the same... Read More

It’s (not) infusion day

And I’m having my damn soufflé, anyway, so take that Great Scott. Take that.  Instead of my infusion I got to sign the paperwork for the new goo. Three signatures.... Read More

The problem with “and”

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More

It was a weird (but amazing) day

I’ve been feeling crappy. I cannot lie. I’m super run down. I would sleep 24 hours a day if that were remotely practical. My walking has been meh, even with... Read More

Relationship status: It’s Complicated

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More

What a dumb day

Today started out pretty nice, really. I woke up around noon after a lovely sleep. I had pancakes with my niece at my favorite breakfast place (who cares if it... Read More

Broken eyes, broken brains and the things we don’t talk about

It’s Sunday and I find myself muddled. Again. I think it’s the weekends where I find myself with lots of time to do nothing, that I struggle. Sometimes it’s not... Read More

Musions on Infusion (possibly the last chapter for a while?)

I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More