Yet another Saturday in the joint

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

Welcome to crazy town

The absurdity of my current situation here in inpatient rehab is difficult to overstate. I am in dire need of an epidural steroid injection to see if we can get... Read More

Where’s Bethy

Hey friends. This is just a quick note to let folks know that I am back in the hospital for a while and am having difficulty writing (typing really) on... Read More

These days

I need an attitude adjustment. There’s just no other way to look at it. So, I’ve come back here, my place to examine all things outside of my control, in... Read More

The fine art of not panicking

There are sayings out there that get tossed around in the MS/chronic illness community that are intended to help folks with MS have perspective on the unique nature of this... Read More

It’s World MS Day (again)…Let’s Have a Talk

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

The first warm days of summer

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More

The Un-Sayable Words We Say

If you’ve been with me on this journey for a little while, you probably know that I rarely hold anything back. For better or worse, these pages have been my... Read More

What the actual F*%K?

I agonized over writing this post. See, I realize that I only a week or so ago published a post wherein I was feeling moderately optimistic and upbeat even about... Read More