Posts filed under: Bad Days

Bad Days

It’s been a minute

I’ve been missing from these pages and it feels like losing a limb. Words are usually more reliable for me. They don’t normally let me down. I don’t like it.... Read More

Let’s talk about sleep

It’s been a minute since I’ve had the inclination to write anything. That probably has a lot to do with the fact that I haven’t really slept in several days... Read More

Caregiver challenges are killing me

As a fiercely independent person it kills me that I have to rely on caregivers for my most basic needs but it’s a reality I’ve had to learn to accept.... Read More

Another harrowing trip to the hospital

It makes you wonder when I’ll ever learn. Another trip to the ICU with dangerously low sodium or hyponytremia after a seizure at home might finally be enough to stop... Read More

The hospital is no place for getting well, now is it?

And you find yourself in the hospital for something that you caused 100% of yourself you feel a little bit foolish. Especially in ICU. It’s not a terribly comfortable place.... Read More

Benzo withdrawal is no joke

I was prescribed Klonipin back in 2015 after first being diagnosed with MS. This was even before most of my symptoms got angry and went bezerk. I hadn’t even been... Read More

Let’s talk about sleep

I’ve been having trouble sleeping. It’s as simple as that. Sleep was never a problem for me before. I would just lay my head down and go to sleep mostly... Read More

Let’s talk about pee, baby

All homage due to Salt ‘n Pepa, talking about pee probably isn’t as fun or interesting to most folks as talking about sex, but hey. I never claimed to write... Read More

The things we don’t talk about (Volume 2)

Back in 2017, before my MS went into hyper-speed mode, I shared what I thought at the time was a very open and vulnerable post about some of the body... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More