Posts filed under: disability progression

I wrote this in May 2021

I wrote this in my journal in 2021 and I read it again tonight and it made me think how relevant it still is so I’m going to copy and... Read More

Let’s talk about pee, baby

All homage due to Salt ‘n Pepa, talking about pee probably isn’t as fun or interesting to most folks as talking about sex, but hey. I never claimed to write... Read More

Harsh realities… Life brings it

I continue to try to focus on gratefulness. I continue to try to force myself to focus on the long-term game. Not this week. Not this month. Hell, not even... Read More

Mindless late-night ramblings

I have a feeling I’m going to regret this…but here is a new “post” of sorts. Though I’m not sure qualifies as a post at all.... Read More

I am

I am squirming inside of this human flesh suit that is so broken. I am stuck inside of my head where I cannot stop obsessing about these strange symptoms and... Read More

And here we are: crisis mode

It’s been a good long time since I’ve felt like my typically quasi-functional MS self. I think that’s been obvious by my unwillingness to write about it. I mean, when... Read More

Irony is my jam

I stumbled across an article from The New Yorker yesterday that got me kind of excited. It was written in 2013 by Meghan O’Rourke about her experience with autoimmune disease... Read More

The ups and downs of a privileged life with chronic illness

According to many reliable sources, i.e. mostly rando blogs on the internet, the five most stressful life events are the following: Death of a loved one Divorce Moving Major illness... Read More

Everything old is new again

More like everything old is old again, if I’m honest. I’m back at the beginning. A very fine place to start, or so said Fraulein Maria, but I’m almost certain... Read More

Where’s Bethy

Hey friends. This is just a quick note to let folks know that I am back in the hospital for a while and am having difficulty writing (typing really) on... Read More