Posts filed under: Everyday Life

The waiting is the hardest part

I’m on my two month flush without DMT’s while I anxiously await approval for Ocrevus. Recent drama didn’t really make things easier (hello? Stress makes my symptoms worse. Good times).... Read More

The problem with “and”

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More

Relationship status: It’s Complicated

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More

What a dumb day

Today started out pretty nice, really. I woke up around noon after a lovely sleep. I had pancakes with my niece at my favorite breakfast place (who cares if it... Read More

In the category of “always learning the hard way…”

I offer this quick update. As evidenced by my schlumping, stomping, dragging, bobbing and weaving all over downtown Pittsburgh today, I can confirm that it is not actually a good... Read More

Greetings from the lost weekend

I’ve always loved my bed. I have always paid a great deal of attention to its bedding, its pillows, its mattress quality. I’ve spent more time and money thinking about... Read More

I was in the room where it happens

Who doesn’t want to see Hamilton? I want to meet that person because I’ve been obsessed with the idea of seeing this show on Broadway the second I popped the... Read More

The game of life

I’ve been dying to write. Ideas have been popping into my head left and right, topics for discussion, news related to my MS, my life…life in general! Here’s the thing.... Read More

To wait for help or not wait for help

That is the question. I don’t like that I’ve become a person who requires so much help. I struggle with it, the idea that I am no longer the independent... Read More

Having myself a merry little MS-mas

I have always loved the holidays. I know. It’s lame. I have a family that I mostly like. (I used to say “I have a perfect family” but I’m thinking... Read More