Posts filed under: Everyday Life

Everyday Life

Baby Steps

I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

Greetings from the Inside

Here’s some news. On what is usually my favorite day ever, that would be hair day, I experienced the first bleach disaster I’ve ever had while in a professional’s chair.... Read More

Moods

A few weeks ago when I looked down at my hand while I was typing some email or other, one of approximately seventeen thousand email I send in the average... Read More

The waiting is the hardest part

I’m on my two month flush without DMT’s while I anxiously await approval for Ocrevus. Recent drama didn’t really make things easier (hello? Stress makes my symptoms worse. Good times).... Read More

The problem with “and”

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More

Relationship status: It’s Complicated

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More

What a dumb day

Today started out pretty nice, really. I woke up around noon after a lovely sleep. I had pancakes with my niece at my favorite breakfast place (who cares if it... Read More

In the category of “always learning the hard way…”

I offer this quick update. As evidenced by my schlumping, stomping, dragging, bobbing and weaving all over downtown Pittsburgh today, I can confirm that it is not actually a good... Read More

Greetings from the lost weekend

I’ve always loved my bed. I have always paid a great deal of attention to its bedding, its pillows, its mattress quality. I’ve spent more time and money thinking about... Read More

I was in the room where it happens

Who doesn’t want to see Hamilton? I want to meet that person because I’ve been obsessed with the idea of seeing this show on Broadway the second I popped the... Read More