Posts filed under: Everyday Life

The ups and downs of a privileged life with chronic illness

According to many reliable sources, i.e. mostly rando blogs on the internet, the five most stressful life events are the following: Death of a loved one Divorce Moving Major illness... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

This is my brain on MS

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More

It’s World MS Day (again)…Let’s Have a Talk

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

The first warm days of summer

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

Lucky number 4

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More

Absurd or Sublime

For anyone with a command of basic math, you’ve probably already figured out that the image up there should be a number 9 and not a number 10. There’s a... Read More

This time of my confinement

I’m officially 31 sleeps away from my very special Valentine’s Day date night with Dr. Nestor the Long-Eared neurosurgeon and the pieces are starting to come together. I’ve gotten my... Read More