Holidays are the best. For this Fourth of July, I was fortunate enough to have not just the usual three-day weekend, but my French-company gives us a five-day weekend for... Read More

As I started writing this post (on my damn phone again…grrr), I got the intense urge to go back through my nearly five years of writing this blog to check... Read More

Alternate title:  “Why I didn’t write an inspirational goodbye to 2020,” by Bethy Bright and Dark. It felt too long? Not punchy enough? Too literal maybe? You know I’ve given... Read More

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

They expect me to shower. Not just once. No they expect me to shower twice. Using some weird red antibacterial soap that looks and smells strange. Oh, I did it... Read More

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More