Posts filed under: General MS Topics

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

It’s World MS Day (again)…Let’s Have a Talk

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

Can you believe it?

They expect me to shower. Not just once. No they expect me to shower twice. Using some weird red antibacterial soap that looks and smells strange. Oh, I did it... Read More

Lucky number 4

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More

I have a hot date for Valentine’s Day

Well. He really isn’t that hot per se. He is a rather twee little man who wears very slim trousers that stop about 3 inches above his ankles with a... Read More

Here we go again.

I used to get all geared up for these end of year posts, back when I was a blog writing newbie. I could feel the inspiration flowing before I even... Read More

The Fun Aunt

My dad had 4 sisters that were very much a part of my childhood. Aunt Gail had a glamorous career with the airlines. Rosemary and her husband Uncle Donald lived... Read More