I stumbled across an article from The New Yorker yesterday that got me kind of excited. It was written in 2013 by Meghan O’Rourke about her experience with autoimmune disease... Read More

In my mind, it was the Buddha or some entity much more spiritual and lofty who told me, and you and everyone else, to be like the water. But it... Read More

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

I realized today that I’d not updated the blog with my latest news coming out of my test dose of intrathecal baclofen to determine my suitability for the baclofen pump.... Read More

This summer wasn’t my favorite. I mean, summer in general isn’t usually my favorite but this one sucked more than usual. That’s probably the result of my multiple sclerosis which... Read More

I’ve been having a tough time these last few weeks, as most of you already know. I’ve experienced a worsening of my major symptoms (walking, weakness, balance, spasticity and pain)... Read More

In my dreams I can walk. It’s funny because I’m aware that it’s a surprising fact, while I’m dreaming, meaning to say that it’s not like I’m dreaming of my... Read More

We used to call it Happy Time, those few hours after work on a Friday, sometimes on another random day if we’d had a worse time of it than usual... Read More