I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More

I’ve written before about how bad I am at optimism. I know it’s nothing to be proud of. I know our thoughts have a direct impact on our lives and... Read More

I had an off-schedule infusion today because it was also my day to visit with The Great Scott, in the flesh. You see TGS when he can see you, not... Read More

It’s infusion day eve. The image above gives a fairly accurate representation of what it feels like the day before I head to Allegheny General Hospital for my monthly fill... Read More

Off schedule infusion day throws me. The routine is different. I didn’t get my post-infusion egg souffle from Panera and that just feels wrong. I can’t take my customary post-infusion... Read More

Well, the much awaited meeting with The Great Scott (this is my pet name for my neurologist, Dr. Scott) was slightly more helpful than I expected. It does throw me... Read More

I feel the need to note that lucky number seven is not a real thing. I’m still sleeping most of the time or feeling like the walking dead. Well. Feeling... Read More

Infusion day starts super early. And usually ends up with me in bed all day. Today is no different! I’m just rousing myself for food. To check in with the... Read More

I have tears in my eyes today. I’m frustrated. Maybe a little bit angry. I find myself having these fantastic fantasies about what my life should be like. Like imagining... Read More

I’ve been rather quiet lately. I’ve got lots to say, but lots more to ruminate on so I suppose I’ve been ruminating more than usual and saying less. I’ve had... Read More