Posts filed under: Uncategorized

Something a little different

I’m tired of writing about my MS. The thing is, nothing is changing fast enough for me. I’m still struggling. I’m still waiting for the illusive switch to flip. It... Read More

4.6 + 11 + 1 = one hot mess

I’ve never been good at math. I was a writing major in college. Even more, I was a creative writing major (with a minor in political science but who cares... Read More

Wishing I had one of these

But since I’m apparently in a marathon that I never signed up for here’s what I imagine that would be like. When preparing for a marathon, you train for it... Read More

The unexpected upside of Lemtrada

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in... Read More

The subtle art of not panicking

When I decided to go for this new approach to my treatment, I made some promises to myself. Maybe they were more like challenges that I presented to myself than... Read More

And then she slept

I’ve been meaning to update the blog with my post-Lemtrada experience sooner than this but here’s the thing: I’ve been asleep. If you’re a regular reader of this blog you... Read More

Musions on Infusions: 40% Down

I When I started this Lemtrada journey on Monday I had every intention of doing a daily blog describing the day-by-day experiences of the treatment. After my first day I... Read More

‘Twas the night before Infusion Week

It felt like it would never get here and now that it has arrived, I’m anxious as hell. Tomorrow it begins. It being my latest DMD, my last ditch effort,... Read More

It finally happened

This whole thing was bound to catch up to me. Eventually. I knew the day would come when I’d be forced to face the fact that this disease I’m still... Read More

I thought you should know…I’ve been here before

It’s not technically another two-month flush, but it feels like it is. I went back into my own archives to remember what I’d written during the actual two-month flush between... Read More