Posts filed under: Uncategorized

Uncategorized

Maybe I have unrealistic expectations

It always comes down to this. The most basic things are my undoing. But when I thought about it more, I am starting to realize something that is probably painfully... Read More

And then you rest 

I had a crazy busy week. Long hours. More running around than I’ve been used to. So much going on at work that my head was spinning by the time... Read More

Life. Is. A. Lot. 

Today was our first day in our swanky new office space. That’s it above. Well. That’s some of it. It’s kind of giant. Much more space than we had before... Read More

Meet my little friend

My post-Ocrevus experience continues this week in the days leading up to my next half dose on May 23 and I have to tell you, it’s been full of interesting... Read More

New flash: I still have MS

Here’s the thing: If you’ve had MS for years and you’ve gone through these early years of highs and lows and more lows and lower lows before and you’ve come... Read More

Baby Steps

I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

Moods

A few weeks ago when I looked down at my hand while I was typing some email or other, one of approximately seventeen thousand email I send in the average... Read More

We’ve set a date!

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More

Two Month Flush: The Breakdown Edition

I’ve been feeling particularly shitty lately, as I think most of you probably know. It’s meant taking everything pretty slow, resting a whole lot and pinning a lot of hope... Read More

The waiting is the hardest part

I’m on my two month flush without DMT’s while I anxiously await approval for Ocrevus. Recent drama didn’t really make things easier (hello? Stress makes my symptoms worse. Good times).... Read More