Posts filed under: Uncategorized

Every. Freaking. Time. 

Every freaking time I decide to put on clean pajamas no more than an hour afterwards, I have the urge to sneeze violently and thus pee myself a little.  Not... Read More

Fifty is nifty…and exhausting

A monumental non-MS related event happened to me this weekend. On Sunday, February 19, I turned 50 years old. I know! Me. Fifty years old. I almost can’t believe it’s... Read More

Hope in a bottle?

Hope is a funny thing. If you’re me, you avoid it because you hold a fundamental philosophy about life that states that if one prepares for the worst possible outcome,... Read More

Check that…

Quick update. So, that whole positive things are looking up I’m getting my new walking drug update that I just posted yesterday? Someone made a mistake.  There was an error... Read More

They like me…

They really like me! Well. That’s probably going a bit far but I got this in the mail today: Of course, I have no actual idea how I actually go... Read More

Greetings from the lost weekend

I’ve always loved my bed. I have always paid a great deal of attention to its bedding, its pillows, its mattress quality. I’ve spent more time and money thinking about... Read More

I was in the room where it happens

Who doesn’t want to see Hamilton? I want to meet that person because I’ve been obsessed with the idea of seeing this show on Broadway the second I popped the... Read More

My Mid-Life Crisis: MS edition

I’m creeping up on kind of a milestone birthday. In a few short weeks, I’m going to be celebrating my 50th birthday. Half a century! It doesn’t even seem possible... Read More

Fill ‘er up

It’s infusion day eve. The image above gives a fairly accurate representation of what it feels like the day before I head to Allegheny General Hospital for my monthly fill... Read More

The game of life

I’ve been dying to write. Ideas have been popping into my head left and right, topics for discussion, news related to my MS, my life…life in general! Here’s the thing.... Read More