Posts filed under: Uncategorized

Darkness falls

When it all gets to be too much, I tend to go quiet. This is a repeating fact that I cannot deny. There was a time when busting out a... Read More

This becomes a book review…I promise

When I first moved into my current house, about a year or so after my husband died when we were both 30, I found myself in a strange spot. I... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

Yet another Saturday in the joint

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

The fine art of not panicking

There are sayings out there that get tossed around in the MS/chronic illness community that are intended to help folks with MS have perspective on the unique nature of this... Read More

The Un-Sayable Words We Say

If you’ve been with me on this journey for a little while, you probably know that I rarely hold anything back. For better or worse, these pages have been my... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

A virtual visit with the Wizard

It sometimes irritates me to recall how often I’ve asked doctors for the convenience of meeting by telephone, each time being told “no.” Now, the world is off its axis... Read More