Today started out pretty nice, really. I woke up around noon after a lovely sleep. I had pancakes with my niece at my favorite breakfast place (who cares if it... Read More

It’s Sunday and I find myself muddled. Again. I think it’s the weekends where I find myself with lots of time to do nothing, that I struggle. Sometimes it’s not... Read More

I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More

So you may or may not know that I’ve been in specialty pharmacy pre-authorization hell for the last few days trying to get my Ampyra refilled longer term. It’s not... Read More

I offer this quick update. As evidenced by my schlumping, stomping, dragging, bobbing and weaving all over downtown Pittsburgh today, I can confirm that it is not actually a good... Read More

Every freaking time I decide to put on clean pajamas no more than an hour afterwards, I have the urge to sneeze violently and thus pee myself a little.  Not... Read More

Quick update. So, that whole positive things are looking up I’m getting my new walking drug update that I just posted yesterday? Someone made a mistake.  There was an error... Read More

I have always loved the holidays. I know. It’s lame. I have a family that I mostly like. (I used to say “I have a perfect family” but I’m thinking... Read More

I love being alone. This seems very odd to many people, but I’ve established a sense of comfort in the solitude that I’ve been given. I treasure it. I hardly... Read More

Cheryl agreed with me yesterday. This is worse than when Chuck died. It seems almost ludicrous to say that but this is actually, really a lot worse. I could pretend... Read More