Posts tagged with: Chronic Illness

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

What a strange night

I’ve been putting off writing this post for a while now. And now that I’m finally writing it, and on my phone of all things, I’m not sure how eloquent... Read More

Darkness falls

When it all gets to be too much, I tend to go quiet. This is a repeating fact that I cannot deny. There was a time when busting out a... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

This is my brain on MS

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

These days

I need an attitude adjustment. There’s just no other way to look at it. So, I’ve come back here, my place to examine all things outside of my control, in... Read More

It’s World MS Day (again)…Let’s Have a Talk

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

The first warm days of summer

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More