Posts tagged with: disability

The ups and downs of a privileged life with chronic illness

According to many reliable sources, i.e. mostly rando blogs on the internet, the five most stressful life events are the following: Death of a loved one Divorce Moving Major illness... Read More

‘Twas the night before discharge

And all through my brain, were thoughts most unwelcome that may drive me insane. I in my pajamas worn for 27 days my aide in her scrubs, packed up my... Read More

Everything old is new again

More like everything old is old again, if I’m honest. I’m back at the beginning. A very fine place to start, or so said Fraulein Maria, but I’m almost certain... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

What a strange night

I’ve been putting off writing this post for a while now. And now that I’m finally writing it, and on my phone of all things, I’m not sure how eloquent... Read More

Darkness falls

When it all gets to be too much, I tend to go quiet. This is a repeating fact that I cannot deny. There was a time when busting out a... Read More

This becomes a book review…I promise

When I first moved into my current house, about a year or so after my husband died when we were both 30, I found myself in a strange spot. I... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

This is my brain on MS

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More