Posts tagged with: disability

What a strange night

I’ve been putting off writing this post for a while now. And now that I’m finally writing it, and on my phone of all things, I’m not sure how eloquent... Read More

Darkness falls

When it all gets to be too much, I tend to go quiet. This is a repeating fact that I cannot deny. There was a time when busting out a... Read More

This becomes a book review…I promise

When I first moved into my current house, about a year or so after my husband died when we were both 30, I found myself in a strange spot. I... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

This is my brain on MS

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

Yet another Saturday in the joint

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

Where’s Bethy

Hey friends. This is just a quick note to let folks know that I am back in the hospital for a while and am having difficulty writing (typing really) on... Read More