Posts tagged with: hope

hope

Been there, done that (and I’m so grateful)

Here’s the thing. We call multiple sclerosis a snowflake disease and with good reason. MS is never the same for any two people. Things that are major issues for me,... Read More

I’ve got nothing

Usually my blog posts start as thoughts that I can’t get out of my head. I noodle and I roll them around until I virtually have to sit down and... Read More

I finally had a massage

(READER NOTE: If you are a cat lover, or any kind of animal lover for that matter, this might be a post you want to skip. I’m serious. I can’t... Read More

Twas the night before infusion #2

Tomorrow, merely one sleep away, is my second full dose of the new goo (Ocrevus for new readers). I feel like a kid before the first day of school. My... Read More

My expensive Internet slippers tried to kill me

It’s been a good long time since I took a good tumble. I haven’t bragged about it much. Especially whilst suffering from the dizzies and woozies during this last relapse... Read More

Keep Passing the Open Windows

That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More

This is a happy post about fear

Sounds like an oxymoron, I realize, to write a happy post about fear. That’s why I’m starting with the good news. I survived! Yet, as I continue to slog my... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

The spaces in between might be the hardest

Nah. That’s probably somewhat of an overstatement but it keeps occurring to me, in the last week or so, as I wait and rest and do everything I am told... Read More

The most important rule of MS Club

I almost hesitate to say this out loud (or in writing, which is the same thing, really, maybe even worse)…but I’ve been feeling a little better these last few days.... Read More