Tomorrow, merely one sleep away, is my second full dose of the new goo (Ocrevus for new readers). I feel like a kid before the first day of school. My... Read More
It’s been a good long time since I took a good tumble. I haven’t bragged about it much. Especially whilst suffering from the dizzies and woozies during this last relapse... Read More
That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More
I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More
Here’s some news. On what is usually my favorite day ever, that would be hair day, I experienced the first bleach disaster I’ve ever had while in a professional’s chair.... Read More
I’ve been holding it together. Mostly. The two month flush is for real, though, and I’m back to that place where I feel like my body is just out of... Read More
And I’m having my damn soufflé, anyway, so take that Great Scott. Take that. Instead of my infusion I got to sign the paperwork for the new goo. Three signatures.... Read More
I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More
I had an off-schedule infusion today because it was also my day to visit with The Great Scott, in the flesh. You see TGS when he can see you, not... Read More
It’s infusion day eve. The image above gives a fairly accurate representation of what it feels like the day before I head to Allegheny General Hospital for my monthly fill... Read More