Posts tagged with: life with MS

This is a happy post about fear

Sounds like an oxymoron, I realize, to write a happy post about fear. That’s why I’m starting with the good news. I survived! Yet, as I continue to slog my... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

I cut my hair (and I didn’t post a pic)

This might seem like no big deal to you. If you know me, you’re probably thinking, “Well thank god because who gives crap about your hair? You’re way too obsessed... Read More

Relapse: the Post Script

  The thing is it doesn’t really matter how fed up I am. When you go through something like this last relapse, you tell yourself that it’s a minor set... Read More

The spaces in between might be the hardest

Nah. That’s probably somewhat of an overstatement but it keeps occurring to me, in the last week or so, as I wait and rest and do everything I am told... Read More

A visit with the wizard

I was nervous looking at my calendar and realizing I had an appointment with The Great Scott yesterday. I always have this irrational fear that I'm not doing my MS... Read More

Don’t call it a comeback

I got cocky again. I know. Shocker but hear me out. I had a decent day yesterday. I got through the whole 8 or so hours of my work day... Read More

Tales of an elderly shut-in, episode 1

Funny things happen when you spend a lot of time alone. Your brain goes places long ago left behind. You start thinking about every little thing. I find it odd,... Read More

Tales from the puffy village

That’s it up there. The puffy village. The place I love most in the world, where I come for comfort, where I lay my head when the world out there... Read More

Life on the inside, part deaux

So as most of you already know, I was rudely awakened at 3:45am with the arrival of my first roommate. One of only three such roommates I’ve ever had in... Read More