Posts tagged with: life with MS

Hope in a bottle?

Hope is a funny thing. If you’re me, you avoid it because you hold a fundamental philosophy about life that states that if one prepares for the worst possible outcome,... Read More

Musions on Infusion, episode (I forget)

I had an off-schedule infusion today because it was also my day to visit with The Great Scott, in the flesh. You see TGS when he can see you, not... Read More

Check that…

Quick update. So, that whole positive things are looking up I’m getting my new walking drug update that I just posted yesterday? Someone made a mistake.  There was an error... Read More

They like me…

They really like me! Well. That’s probably going a bit far but I got this in the mail today: Of course, I have no actual idea how I actually go... Read More

Greetings from the lost weekend

I’ve always loved my bed. I have always paid a great deal of attention to its bedding, its pillows, its mattress quality. I’ve spent more time and money thinking about... Read More

My Mid-Life Crisis: MS edition

I’m creeping up on kind of a milestone birthday. In a few short weeks, I’m going to be celebrating my 50th birthday. Half a century! It doesn’t even seem possible... Read More

Fill ‘er up

It’s infusion day eve. The image above gives a fairly accurate representation of what it feels like the day before I head to Allegheny General Hospital for my monthly fill... Read More

The game of life

I’ve been dying to write. Ideas have been popping into my head left and right, topics for discussion, news related to my MS, my life…life in general! Here’s the thing.... Read More

The new Mr. Costanza

Mr. Constanza lived on my street since the day I moved in, about three houses up on the same side of the street. He and his wife, Mrs. Constanza, were... Read More

To wait for help or not wait for help

That is the question. I don’t like that I’ve become a person who requires so much help. I struggle with it, the idea that I am no longer the independent... Read More