Charlotte airport gets strike TWO. I waited for 25 minutes for my wheels, until I gave up and walked. I got as far as the “assistance hub” where I saw... Read More

It’s the night before my next trip, the one that is rudely interrupting my weekend and taking me back to Charlotte. It will be my first trip on my new... Read More

My life has become a chemistry experiment. I mean, on one hand, I guess that’s better than my life being a never ending loop of sleeping, working, trying to watch... Read More

In the battle of provigil vs baclofen…One wakes me up. One knocks me out… Provigil is winning. I’m wide awake. It’s 4AM. And beginning to panic about the wasted day... Read More

I took my first dose of Provigil today. I’m not sure I loved it. I felt kind of tingly and buzzy all day. Of course, I sort of forgot to... Read More

Well, the much awaited meeting with The Great Scott (this is my pet name for my neurologist, Dr. Scott) was slightly more helpful than I expected. It does throw me... Read More

It’s been a really shitty couple of days with these legs. They just don’t want to work. They’re so heavy. And shaky. All at the same time. I’m trying to... Read More

It’s Sunday. I didn’t sleep until 1PM today. I am celebrating the break in the weather by trying different things – like getting out of bed early and going to... Read More

I feel the need to note that lucky number seven is not a real thing. I’m still sleeping most of the time or feeling like the walking dead. Well. Feeling... Read More

Infusion day starts super early. And usually ends up with me in bed all day. Today is no different! I’m just rousing myself for food. To check in with the... Read More