Posts tagged with: life with MS

life with MS

Creating a life worth living is hard work

I’ve been here before. Trying to figure out how to live with my disease. I have nothing but time on my hands. It can be hard to figure out what... Read More

The shameful things I do

I have an obsession around bodily functions involving the bathroom. Pooping and peeing specifically. See? I told you this was going to be about the shameful things I do. My... Read More

And just like that

You find yourself back where you started.With a big chunk of time on your hands but nothing to do with it. I try to remember what I used to like... Read More

When you realize what’s happening…it’s grief fighting your quest for a life worth living

This never-ending pain. This constant sorrow. When it finally registers to you that grief has come home, and she sits herself down on your heart it almost feels like relief.... Read More

Wheelchair-related pain is killing me

I can’t really adequately express how much this pain is disrupting my life. It’s so intense. I’m quite certain nobody prepared me for this level of discomfort when I first... Read More

Finding a book agent is tough business

Trying to bring Bethy Bright and Dark the memoir to life is rough, readers. I’m committed, sure I am, but sitting at my computer querying agents all day is taking... Read More

Alone again, naturally

I can remember a time when being alone with my favorite thing. It was my idea of a perfect day to spend it by myself. I was my own best... Read More

This isn’t the end (my review of Ardra’s “Fallosophy”)

When another MS’r DOES good out in the world it deserves to be acknowledged. And that’s exactly what Adra from MS tripping on air has done with her new book... Read More

Comfort comes in small doses

Anything can be comfortable for a short period of time. What I’m going to write about today is what happens when you find yourself unable to stand and you have... Read More

The hospital is no place for getting well, now is it?

And you find yourself in the hospital for something that you caused 100% of yourself you feel a little bit foolish. Especially in ICU. It’s not a terribly comfortable place.... Read More