Posts tagged with: life with MS

These days

I need an attitude adjustment. There’s just no other way to look at it. So, I’ve come back here, my place to examine all things outside of my control, in... Read More

It’s World MS Day (again)…Let’s Have a Talk

World MS day happens every year on May 30. As I look back over the last four years that such an event was even remotely relevant to me, I’ve struggled... Read More

The first warm days of summer

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More

The Un-Sayable Words We Say

If you’ve been with me on this journey for a little while, you probably know that I rarely hold anything back. For better or worse, these pages have been my... Read More

What the actual F*%K?

I agonized over writing this post. See, I realize that I only a week or so ago published a post wherein I was feeling moderately optimistic and upbeat even about... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

Random thoughts from the living room floor

It’s not a bad thing this time, this whole being on the floor thing. See, I had something called a “co-session” of therapy this afternoon where my PT and OT... Read More

Finally: The Story of My Inpatient Rehabilitation

My arm is still killing me. My legs still refuse to cooperate. And the whole world seems to have gone insane. Seems like the perfect time to write a new... Read More

This video thing…

It’s weird. I agree. But it’s what I can do right now so…enjoy Bethy Bright and Dark the Movie, part II. Also enjoy the wicked strange faces I pulled for... Read More

Can you believe it?

They expect me to shower. Not just once. No they expect me to shower twice. Using some weird red antibacterial soap that looks and smells strange. Oh, I did it... Read More