Posts tagged with: living with MS

When everyone else seems to be drinking lemonade.

I’m a member of many Facebook groups dedicated to the transition to the new goo, Ocrevus, because I was looking for any information at all from any source at all... Read More

The party was awesome (the party was horrible)

All of the work to get to the big day was worth it. Our new office Open House was a great success. All of that pre-party angst was over and... Read More

Relapse: Part Deaux

He called me. He actually called me himself. He didn’t sic Evil Nurse Carol on me, The Great Scott all powerful and good called me back his very own self.... Read More

Maybe I have unrealistic expectations

It always comes down to this. The most basic things are my undoing. But when I thought about it more, I am starting to realize something that is probably painfully... Read More

Meet my little friend

My post-Ocrevus experience continues this week in the days leading up to my next half dose on May 23 and I have to tell you, it’s been full of interesting... Read More

New flash: I still have MS

Here’s the thing: If you’ve had MS for years and you’ve gone through these early years of highs and lows and more lows and lower lows before and you’ve come... Read More

Baby Steps

I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

Greetings from the Inside

Here’s some news. On what is usually my favorite day ever, that would be hair day, I experienced the first bleach disaster I’ve ever had while in a professional’s chair.... Read More

The Home Stretch is Rough

I’ve been holding it together. Mostly. The two month flush is for real, though, and I’m back to that place where I feel like my body is just out of... Read More

We’ve set a date!

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More