I’ve been holding it together. Mostly. The two month flush is for real, though, and I’m back to that place where I feel like my body is just out of... Read More

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More

I’ve been feeling particularly shitty lately, as I think most of you probably know. It’s meant taking everything pretty slow, resting a whole lot and pinning a lot of hope... Read More

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More

I’ve been feeling crappy. I cannot lie. I’m super run down. I would sleep 24 hours a day if that were remotely practical. My walking has been meh, even with... Read More

It’s Sunday and I find myself muddled. Again. I think it’s the weekends where I find myself with lots of time to do nothing, that I struggle. Sometimes it’s not... Read More

I offer this quick update. As evidenced by my schlumping, stomping, dragging, bobbing and weaving all over downtown Pittsburgh today, I can confirm that it is not actually a good... Read More

You already know this has been a tough week. I’ve been struggling openly with a myriad of annoying symptoms that are seriously getting me down. Mostly, my walking has been... Read More

I had a rough day today, mentally speaking. Maybe because it was Saturday. And the weather was beautiful. And I had nothing to do and nowhere to be. It kind... Read More