Posts tagged with: ms problems

ms problems

Creating a life worth living is hard work

I’ve been here before. Trying to figure out how to live with my disease. I have nothing but time on my hands. It can be hard to figure out what... Read More

The people that make a difference: My best friend and caregiver Iwona or my girl Evie

I complain about this MS life on the blog quite a bit. Lately MS seems to take up every millimeter of my head, me heart and my soul but there’s... Read More

The shameful things I do

I have an obsession around bodily functions involving the bathroom. Pooping and peeing specifically. See? I told you this was going to be about the shameful things I do. My... Read More

When you realize what’s happening…it’s grief fighting your quest for a life worth living

This never-ending pain. This constant sorrow. When it finally registers to you that grief has come home, and she sits herself down on your heart it almost feels like relief.... Read More

Wheelchair-related pain is killing me

I can’t really adequately express how much this pain is disrupting my life. It’s so intense. I’m quite certain nobody prepared me for this level of discomfort when I first... Read More

Learning to live with discomfort

In my dreams I can walk. I’m going to tell you a story about a dream I had recently wherein I could walk.  I have these dreams often. They’re often... Read More

I wrote this in May 2021

I wrote this in my journal in 2021 and I read it again tonight and it made me think how relevant it still is so I’m going to copy and... Read More

Let’s talk about pee, baby

All homage due to Salt ‘n Pepa, talking about pee probably isn’t as fun or interesting to most folks as talking about sex, but hey. I never claimed to write... Read More

Harsh realities… Life brings it

I continue to try to focus on gratefulness. I continue to try to force myself to focus on the long-term game. Not this week. Not this month. Hell, not even... Read More

Mindless late-night ramblings

I have a feeling I’m going to regret this…but here is a new “post” of sorts. Though I’m not sure qualifies as a post at all.... Read More