I thought you should know the truth. It’s now 25 sleeps until baclofen pump surgery day and I’m falling apart. Losing my mind. Feeling terrible and wishing my life away.... Read More

Well. He really isn’t that hot per se. He is a rather twee little man who wears very slim trousers that stop about 3 inches above his ankles with a... Read More

So, wow. Things look a little different around here, don’t they? I felt like the blog needed a little love. The thing is, when I started writing this blog and... Read More

It’s been a rough couple of days up in here in the land of BBAD. I feel like way too many of my posts start with those words lately but... Read More

I’ve been having a tough time these last few weeks, as most of you already know. I’ve experienced a worsening of my major symptoms (walking, weakness, balance, spasticity and pain)... Read More

I’ve been struggling, friends, on so many levels that I’m almost not sure where to begin with this post. The struggle is multi-layered, of course, because you wouldn’t expect an... Read More

In my dreams I can walk. It’s funny because I’m aware that it’s a surprising fact, while I’m dreaming, meaning to say that it’s not like I’m dreaming of my... Read More

It’s been a while. I keep thinking to myself…You really should write something. You really should take the time to get your thoughts on a page – figure something out.... Read More

We used to call it Happy Time, those few hours after work on a Friday, sometimes on another random day if we’d had a worse time of it than usual... Read More

I have to be honest. I’ve been having trouble writing, this is a full-on truth that I cannot deny but while some of my challenge is definitely mental, a good... Read More