Posts tagged with: MS

Drunk Texting, MS Edition

Another shit body day. Pain everywhere. Legs whack. Before I went to bed last night, I sent a lengthy email to The Great Scott (TGS) inquiring about this whole thing... Read More

Maybe I have unrealistic expectations

It always comes down to this. The most basic things are my undoing. But when I thought about it more, I am starting to realize something that is probably painfully... Read More

And then you rest 

I had a crazy busy week. Long hours. More running around than I’ve been used to. So much going on at work that my head was spinning by the time... Read More

Life. Is. A. Lot. 

Today was our first day in our swanky new office space. That’s it above. Well. That’s some of it. It’s kind of giant. Much more space than we had before... Read More

New flash: I still have MS

Here’s the thing: If you’ve had MS for years and you’ve gone through these early years of highs and lows and more lows and lower lows before and you’ve come... Read More

Baby Steps

I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

We’ve set a date!

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More

I’ve been kind of quiet lately

There’s been a good reason for it, to be honest. I wanted to write a post about the situation I found myself in last Friday afternoon but at the same... Read More

It’s (not) infusion day

And I’m having my damn soufflé, anyway, so take that Great Scott. Take that.  Instead of my infusion I got to sign the paperwork for the new goo. Three signatures.... Read More

It was a weird (but amazing) day

I’ve been feeling crappy. I cannot lie. I’m super run down. I would sleep 24 hours a day if that were remotely practical. My walking has been meh, even with... Read More