Posts tagged with: multiple sclerosis

Something a little different

I’m tired of writing about my MS. The thing is, nothing is changing fast enough for me. I’m still struggling. I’m still waiting for the illusive switch to flip. It... Read More

4.6 + 11 + 1 = one hot mess

I’ve never been good at math. I was a writing major in college. Even more, I was a creative writing major (with a minor in political science but who cares... Read More

Wishing I had one of these

But since I’m apparently in a marathon that I never signed up for here’s what I imagine that would be like. When preparing for a marathon, you train for it... Read More

When your switch won’t flip

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More

Update from my bubble…Inside the mind of one house-bound MS’er

Patient, calm, Zen-Beth has left the building, folks. She’s been replaced with Can-We-Get-This-Show-On-The-Road-Beth and you know that’s not a good thing. Not a good thing at all. Let’s see…where have... Read More

The unexpected upside of Lemtrada

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in... Read More

And then she slept

I’ve been meaning to update the blog with my post-Lemtrada experience sooner than this but here’s the thing: I’ve been asleep. If you’re a regular reader of this blog you... Read More

Musions on Infusions: 40% Down

I When I started this Lemtrada journey on Monday I had every intention of doing a daily blog describing the day-by-day experiences of the treatment. After my first day I... Read More

It finally happened

This whole thing was bound to catch up to me. Eventually. I knew the day would come when I’d be forced to face the fact that this disease I’m still... Read More

The in-between times are the hardest: episode 3? 4?

The labs have been drawn. So many vials of blood! The urine has been tested. The body has been checked for suspicious moles (all clear) and the pap smear has... Read More