Posts tagged with: multiple sclerosis

A very bright and dark Christmas

I’m sure it will come as no surprise to any of my readers that I was not looking forward to the Christmas holidays this year. I mean, I’m not terribly... Read More

Been there, done that (and I’m so grateful)

Here’s the thing. We call multiple sclerosis a snowflake disease and with good reason. MS is never the same for any two people. Things that are major issues for me,... Read More

MS Life is Chock Full ‘o Irony

You probably already knew that. MS is a mean, relentless, ironic disease. It’s actually one of my most obvious observations since this whole wacky ride began almost two years ago... Read More

I finally had a massage

(READER NOTE: If you are a cat lover, or any kind of animal lover for that matter, this might be a post you want to skip. I’m serious. I can’t... Read More

The blog post that almost wasn’t

By now, if you’ve read anything of this blog you know that I am a daily writer. I’ve written in a journal for over 20 years. I have stacks and... Read More

Twas the night before infusion #2

Tomorrow, merely one sleep away, is my second full dose of the new goo (Ocrevus for new readers). I feel like a kid before the first day of school. My... Read More

When words fail the writer

We all get there eventually, I guess. We all get to the point where you are just so blind with anger and frustration that you don’t even have words to... Read More

Keep Passing the Open Windows

That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

Technical difficulty: LOW (or is it?)

So I thought today was a simple day. I had meetings all morning that were best done on the phone from home (whew). Then I happily noticed that it is... Read More