Posts tagged with: multiple sclerosis

Twas the night before infusion #2

Tomorrow, merely one sleep away, is my second full dose of the new goo (Ocrevus for new readers). I feel like a kid before the first day of school. My... Read More

When words fail the writer

We all get there eventually, I guess. We all get to the point where you are just so blind with anger and frustration that you don’t even have words to... Read More

Keep Passing the Open Windows

That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

Technical difficulty: LOW (or is it?)

So I thought today was a simple day. I had meetings all morning that were best done on the phone from home (whew). Then I happily noticed that it is... Read More

The spaces in between might be the hardest

Nah. That’s probably somewhat of an overstatement but it keeps occurring to me, in the last week or so, as I wait and rest and do everything I am told... Read More

A visit with the wizard

I was nervous looking at my calendar and realizing I had an appointment with The Great Scott yesterday. I always have this irrational fear that I'm not doing my MS... Read More

The tortoise and the hare (guess which one I am)…

I’m working on adjusting my expectations but I have to be honest, it’s harder than I want it to be. Listen. I’ve never been the hare. Even at my best,... Read More

Don’t call it a comeback

I got cocky again. I know. Shocker but hear me out. I had a decent day yesterday. I got through the whole 8 or so hours of my work day... Read More

Tales of an elderly shut-in, episode 1

Funny things happen when you spend a lot of time alone. Your brain goes places long ago left behind. You start thinking about every little thing. I find it odd,... Read More