And I’m having my damn soufflé, anyway, so take that Great Scott. Take that.  Instead of my infusion I got to sign the paperwork for the new goo. Three signatures.... Read More

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More

I’ve been feeling crappy. I cannot lie. I’m super run down. I would sleep 24 hours a day if that were remotely practical. My walking has been meh, even with... Read More

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More

Today started out pretty nice, really. I woke up around noon after a lovely sleep. I had pancakes with my niece at my favorite breakfast place (who cares if it... Read More

I’m laying in bed knowing I should be asleep if I want tomorrow not to suck, but my broken brain won’t let me drift away into blissful nothingness. Not even... Read More

So you may or may not know that I’ve been in specialty pharmacy pre-authorization hell for the last few days trying to get my Ampyra refilled longer term. It’s not... Read More

Every freaking time I decide to put on clean pajamas no more than an hour afterwards, I have the urge to sneeze violently and thus pee myself a little.  Not... Read More

I’ve written before about how bad I am at optimism. I know it’s nothing to be proud of. I know our thoughts have a direct impact on our lives and... Read More

Hope is a funny thing. If you’re me, you avoid it because you hold a fundamental philosophy about life that states that if one prepares for the worst possible outcome,... Read More