Posts tagged with: Single Spoonie

Relapse: Part Deaux

He called me. He actually called me himself. He didn’t sic Evil Nurse Carol on me, The Great Scott all powerful and good called me back his very own self.... Read More

Drunk Texting, MS Edition

Another shit body day. Pain everywhere. Legs whack. Before I went to bed last night, I sent a lengthy email to The Great Scott (TGS) inquiring about this whole thing... Read More

Life. Is. A. Lot. 

Today was our first day in our swanky new office space. That’s it above. Well. That’s some of it. It’s kind of giant. Much more space than we had before... Read More

Meet my little friend

My post-Ocrevus experience continues this week in the days leading up to my next half dose on May 23 and I have to tell you, it’s been full of interesting... Read More

Baby Steps

I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

Greetings from the Inside

Here’s some news. On what is usually my favorite day ever, that would be hair day, I experienced the first bleach disaster I’ve ever had while in a professional’s chair.... Read More

Moods

A few weeks ago when I looked down at my hand while I was typing some email or other, one of approximately seventeen thousand email I send in the average... Read More

We’ve set a date!

Or, more accurately, so happy for ME! I am running on fumes people. FUMES. Each day further away I get from my last Tysabri infusion gets a little worse. There... Read More

Two Month Flush: The Breakdown Edition

I’ve been feeling particularly shitty lately, as I think most of you probably know. It’s meant taking everything pretty slow, resting a whole lot and pinning a lot of hope... Read More

The problem with “and”

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More