Posts tagged with: Single Spoonie

The most important rule of MS Club

I almost hesitate to say this out loud (or in writing, which is the same thing, really, maybe even worse)…but I’ve been feeling a little better these last few days.... Read More

When everyone else seems to be drinking lemonade.

I’m a member of many Facebook groups dedicated to the transition to the new goo, Ocrevus, because I was looking for any information at all from any source at all... Read More

Another day…another missive from The Great Scott

Last time, on bethybrightanddark.com, we found our heroine in some distress. After a two month flush without meds, and the long awaited first dose of the new goo (aka Ocrevus),... Read More

The party was awesome (the party was horrible)

All of the work to get to the big day was worth it. Our new office Open House was a great success. All of that pre-party angst was over and... Read More

Relapse: Part Deaux

He called me. He actually called me himself. He didn’t sic Evil Nurse Carol on me, The Great Scott all powerful and good called me back his very own self.... Read More

Drunk Texting, MS Edition

Another shit body day. Pain everywhere. Legs whack. Before I went to bed last night, I sent a lengthy email to The Great Scott (TGS) inquiring about this whole thing... Read More

Life. Is. A. Lot. 

Today was our first day in our swanky new office space. That’s it above. Well. That’s some of it. It’s kind of giant. Much more space than we had before... Read More

Meet my little friend

My post-Ocrevus experience continues this week in the days leading up to my next half dose on May 23 and I have to tell you, it’s been full of interesting... Read More

Baby Steps

I’ve been wanting to have a minute to report in on my first infusion with the new goo, more formally known as recently FDA-approved multiple sclerosis DMT, Ocrevus. But I’ve... Read More

Greetings from the Inside

Here’s some news. On what is usually my favorite day ever, that would be hair day, I experienced the first bleach disaster I’ve ever had while in a professional’s chair.... Read More