I wrote this in my journal in 2021 and I read it again tonight and it made me think how relevant it still is so I’m going to copy and... Read More

It’s been a good long time since I’ve felt like my typically quasi-functional MS self. I think that’s been obvious by my unwillingness to write about it. I mean, when... Read More

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

It’s weird. I agree. But it’s what I can do right now so…enjoy Bethy Bright and Dark the Movie, part II. Also enjoy the wicked strange faces I pulled for... Read More

…writing arm. So I’ve tried something a little different this time. I made a little video. No stylists, makeup artists or cinematographers were involved in this very high quality production.... Read More

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in... Read More

I’ve been meaning to update the blog with my post-Lemtrada experience sooner than this but here’s the thing: I’ve been asleep. If you’re a regular reader of this blog you... Read More

This whole thing was bound to catch up to me. Eventually. I knew the day would come when I’d be forced to face the fact that this disease I’m still... Read More

It’s not technically another two-month flush, but it feels like it is. I went back into my own archives to remember what I’d written during the actual two-month flush between... Read More